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Psoriasis Cure Now reaching out to two million MySpace users with psoriasis
(August 23, 2006) Psoriasis Cure Now, a nonprofit patient advocacy group, today launched its MySpace site, joining more than 100 million other users at the wildly popular social networking site. The psoriasis group is building a team of volunteer advisors to help it work within the MySpace world to support the estimated two million MySpace users with psoriasis, while helping educate the other 98 million about psoriasis and psoriatic arthritis.
“To paraphrase bank robber Willie Sutton, we joined MySpace because that’s where the people are, particularly young people,” said Michael Paranzino, president of Psoriasis Cure Now. “It’s the same reason our podcasts are available free on iTunes. Wherever there are people with psoriasis, we want to be there to support them. And whenever we can educate other Americans about this disease, we want to do that as well.”
Last week, Psoriasis Cure Now released two new resources to help parents of children with psoriasis as their kids head back to school: a podcast interview with a leading pediatric dermatologist discussing how to treat psoriasis in children and how to help them cope with it; and a fact sheet on psoriasis in children that parents can print off the internet and deliver to their child’s school teacher. These resources, and more information on the group’s MySpace initiative, are available at www.PsoriasisKids.org .
Hundreds of thousands of American children have psoriasis, a non-contagious disease of the immune system that causes skin cells to replicate too quickly, producing dry skin that can itch, crack, bleed and be quite painful. A recent study in the British Journal of Dermatology found that children with psoriasis report impairment in their quality of life that equals the impairment reported by children with other chronic illnesses such as epilepsy, diabetes and asthma.
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